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However, when researcher Rebecca Marmor, MD, looked into the impact of online chat rooms on patients’ treatment decisions, Jolie’s name did not appear once.
Marmor and a group of UC San Diego colleagues conducted a 2016 study to explore the controversy of why so many women with non-genetic breast cancer were requesting contralateral prophylactic mastectomy, even though the operation did not improve their survival.“We expected to find that women in these online rooms would discuss surgical options, including risks and benefits,” said Marmor, an informatics fellow and surgery resident at UC San Diego School of Medicine.
Researchers at UC San Diego have looked into whether posts within these common interest sites influence surgical decisions.
When Angelina Jolie revealed her breast cancer diagnosis and treatment in 2013, some researchers decried the “Jolie effect,” declaring that women decided to get preventive double mastectomies primarily based upon Jolie’s example.
Adventurers are looking for cutting-edge information or tips on alternate therapies and treatments, such as off-label drug uses not offered by their clinicians or local hospitals.
These sites are more trustworthy and often have a variety of forums set up specific to the interests of users.”Huh reminds users to be aware that their posts may be public or widely seen, even if they are required to create a user name and password to post.Scientists are users who want scientifically validated information from these forums.For information to be deemed valid, they require empirical evidence.Look for clear disclosures of board members and funding support.In general, non-profit organizations help curate diverse information from academic research and blog articles by health experts and patient representatives.
Opportunists are visitors who find the online community after a Google search.